Here are some of the song titles I considered as a title for this largely diabetes-related post:
“Sugar Won’t Work”
“I Want Some Sugar in My Bowl”
“Pour Some Sugar on Me”
“Blood Sugar Sex Magik”
As you can see, I went with the simplest and broadest one because I have had a lot of different feelings about my diabetes over the past six weeks.
For a little over two weeks I’ve worn a continuous glucose monitor on my arm. Here’s how it works, when it works (more on when it doesn’t work later). I have an app on my phone and when I hold the phone up to the monitor it takes a reading, which I can view in various ways: a line graph of the last twenty-four hours (with the line running through, above, or below a green band that represents the desirable range), a color-coded log of all the readings, a graph of my average blood sugar at different times of the day in line or bar graph form, etc. Beth is quite taken with the cool tech aspect of it.
When I first heard about the monitor, I was a little alarmed at the idea of living with this level of surveillance accountability. Several healthcare professionals–my primary care provider, a nurse, and eventually a diabetes coach I haven’t met yet–all have or will have access to the data. But despite my misgivings, it is educational to have real time feedback and it’s more convenient than the finger sticks I used to do when I had gestational diabetes in 2006. It quickly won me over, in theory.
However… in practice I am having a lot of trouble with the sensors. They expire after two weeks and have to be replaced. Of the first four I applied, only one worked. Two wouldn’t take a reading at all and one gave numbers that were clearly wrong. For instance, it told me my blood sugar had fallen into the 40s, which the nurse told me couldn’t be true because I would have felt quite ill (dizzy, with blurred vision, etc.) and I did not. Later it told me my blood sugar had jumped from 50 to 150 after eating a taco and some salad, which isn’t in line with how I’ve been responding to food, so I discarded that sensor. And whenever I do that, or one won’t start, we, and by we, I mean Beth, spends half an hour on the phone arguing with recalcitrant agents about why we need a new one. I am deeply grateful for this service, as it’s the kind of thing that would cause me to burst into tears and give up.
So after a few days without one, I have a new sensor I’ve been wearing since yesterday evening and it seemed a little off–the values are not completely out of the ballpark, but consistently lower than what I’d expect. So I dug out my old glucose monitor and got some new strips for it (the original ones expired in 2007) and I tested the sensor against the fingerstick method and at least the one time I tried it, my instinct was right. The fingerstick reading was 13 points higher than the sensor. It’s discouraging not to be able to trust the numbers because when it worked, it seemed to be a good tool for helping me stay in range.
And speaking of the range, I found out just the other day that I’d misunderstood the range my primary care provider had given me as a target and I actually have more leeway than I thought. This is good because even though I was staying in range, it was hard. I was very limited in the foods I could eat and I was often hungry (which is pretty much how I remember gestational diabetes).
Now there is going to be a lot of detail about what I can and can’t eat. If that seems unbearably boring, skip to the end of the post for updates on the kids and other non-food related items.
Breakfast is a challenge. When you have diabetes whatever you eat first hits you much harder than it would if you ate it later in the day, so it originally seemed foods I could eat in small quantities later in the day (almost any kind of grain or fruit) I couldn’t eat in the morning, which is too bad because a bowl of cereal with fruit is pretty much my standard weekday breakfast.
I kept experimenting with ways to eat cereal. Could I stay in range if I ate the grain-free cereal in which chickpeas impersonate oats? No. If I tried that cereal with unsweetened almond milk instead of cow’s milk? No. Is hot cereal better? Yes, but not enough. How about a half portion of oatmeal with walnuts in it and eggs and veggie sausage on the side. Bingo. A three-quarters portion of grits with cheese? You should have stopped while you were ahead.
However, when I went back and looked at my chart, I found only two breakfasts put me out of the new range, both of them cold cereal, though the full portion of oatmeal took me right up to the new limit. Smaller portions of hot cereal seem feasible, and in the meanwhile I’ve found a couple protein-rich breakfasts that work (Greek yogurt mixed with peanut butter or eggs with vegetarian sausage). Today I tried the yogurt and peanut butter with half a banana mashed into it and even if I mentally add ten to fifteen points to what the sensor told me, it went fine.
The nurse has encouraged experimentation, even if I go out of range, because everyone’s response to food is individual and if I stick to just a few safe foods I’ll never really know what I can eat. When I said never eating dessert again would not be sustainable for me, she latched onto that word and seemed really happy about it. I guess I stumbled on a buzzword. She suggested I try a small dessert, just to see what happens. So last week I went to Starbucks and bought a pumpkin scone. You know, the ones with frosting and five hundred calories? I love those. It’s my favorite fall pastry and I’d been bemoaning all the seasonal foods I can’t eat to Beth and she’d suggested I try getting a scone and cutting it into small pieces to eat over the course of several days. So I did and to my delight, I did not go out of range (and that was the old range). I had a piece every day for three days in a row. (I gave one to North.)
Besides cereal and dessert, what I really want to eat is pizza. It’s what we have for dinner every Friday. In fact, it’s a tradition that dates back to my family of origin, so a Friday night without pizza would seem very sad. Both times I tried it, eating only one slice with a salad, I thought I’d gone out of range, but as it turned out, I hadn’t.
I’m glad to be able to eat more fruit. I was already eating small portions in the afternoon paired with a protein (e.g. half an apple with peanut butter, half a peach in a salad with goat cheese, fourteen raisins in cream cheese on a celery stick, etc.) but because I wasn’t eating it at breakfast, my fruit consumption went down while my vegetable consumption stayed about the same, so overall I was eating less produce, which was disheartening and made me worry a little about my fiber intake.
At one point in our conversation, the nurse told me the goal was to fit diabetes into my life instead of fitting myself into diabetes. At this point, that’s aspirational. I’m spending a lot more time than I’d like thinking about food, but that’s probably to be expected in the beginning.
Uncomfortable in My Skin
And to complicate matters… four weeks after my diabetes diagnosis and just two days after I started wearing the monitor, I went to see an allergist. I’d been breaking out in hives all over my body since mid-July. I think I only mentioned it once, around the time it started, because I was able to keep it more or less under control with antihistamines. Back in August, my primary care provider suggested I keep a food and hives log and I did, but neither of us could find any pattern in it. Next she said to try two weeks of taking an antihistamine every day, not just when the hives appeared, to see if a break from them would cause my body to reset, but they came right back as soon as I stopped.
So the allergist was the next step. I got a skin test for dozens of allergies and basically my whole back broke out in welts. The allergist said it didn’t seem likely I am actually suddenly allergic to all the things I reacted to, a list which includes: soy, rye, oats, various nuts, a couple kinds of seafood, a couple kinds of seeds, dust mites, cats, cockroaches, rabbits, mice, and a bunch of different kinds of grasses and pollens. He suspected that some unknown thing was causing my body to be (possibly temporarily) highly reactive and it might not be a true allergy or sensitivity.
His plan was to repeat the antihistamine-every-day experiment, but for two months instead of two weeks, to see if a longer hive-free period was needed to banish them. But he also said while it would not be practical to stop eating all the foods on the list, I should avoid soy during this test period, because that was the food that provoked the strongest reaction. That’s right, soy, while I’m trying to eat a high-protein, vegetarian diet. So, that’s been fun. The good news is a lot of the higher end fake meat we don’t usually buy is soy-free, so now we have an excuse to buy it. I am hoping I will be cleared to eat soy again, but I have noticed I do have fewer breakthrough hives than when I was taking a daily antihistamine and still eating soy, so maybe not.
Non-Dietary Related News
Little by little, events that were cancelled last year are happening. First, the Takoma Park street festival was the first weekend of October. Since the folk festival (usually held in September) didn’t happen two years in a row, it was nice to get a little fix of live music at a stage tucked in a side street between all the booths of vendors. Better still, the performer we went to see was a girl who went to the kids’ preschool, one year ahead of North. Anna Grace and North also attended drama camp together for many years and they both acted at Highwood Theatre before it closed two years ago. She sang Hazel Dickens, Janis Joplin, and Jerry Garcia covers, along with some of her father’s music. Her dad is also a musician and they have been performing together for years. It was fun to see them making music together.
Next, my book club met in person last week for the first time since January 2020. In fact, we’re meeting three times in October and twice in November to discuss Vanity Fair (four times) and The Haunting of Hill House (once). I’m leading the discussion on Hill House, so I’ve been busy re-reading the book and a thick biography of Shirley Jackson and watching the 1963 film version and trying to remember what I used to know about Hill House and Jackson when I taught this book.
Best of all, the Halloween parade and costume contest is on. Long-time readers know how important this event is to my kids. North and Beth went to Value Village to buy costume components last weekend. They’re going to be a drowning person.
Meanwhile, North’s been keeping busy with the school play. They’re costumes manager and one the kids on the costume crew is a preschool classmate. North and Talia went to different elementary and middle schools, but they played on the same basketball team for six years (remember the Pandas?) and when a teacher said they seemed to be working well together, Talia said, “Well, we’ve known each other since we were two.” One of the lead actors is also a Purple School alum, from another class.
North has also gotten involved in student activism at their school. They formed an organization to try to replace the powderpuff football game that’s held every year before Homecoming with some less sexist, more gender-inclusive activity. They call themselves the Powerpuffs. So far they’ve met with a school counselor, student government, and the school’s Gay-Straight Alliance. They are going to talk to the principal soon. It seems like it will be an uphill battle, as a lot of people are invested in this tradition, but since Homecoming was last week, they got some publicity. North has been managing their social media presence. I think it’s helped North meet some like-minded people. As ninth grade was almost entirely online, North didn’t make friends at their new school until this year. It’s nice that between theater and the Powerpuffs, they’re back in the mix socially.
Noah is doing well, too. He’s enjoying his apartment and cooking for himself so much that he’s decided to switch to the minimal five-meal-a-week dining plan. We’re giving him the money that change will save for groceries. He’s playing in a band for non-music majors that will have a concert in early December, he’s still doing video editing for ICTV, and he’s joined the drone club. He went flying with them on Saturday and when he texted me about getting to fly a more advanced drone than the one he owns, he seemed happy. He provided a lot of detail, which is not always a feature of his texts, and he even used an exclamation point. He’s also thinking about getting a job and he asked Beth to mail him a couple of his dress shirts for interviews.
I’m really proud of how both kids are bouncing back after the pandemic school year. Maybe they can inspire me as I face my own new challenges.